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Using human research ethics I need you to advise researchers and other stakeholders about how to do research ethically when that research involves Native American people.
This is not an “open topic” paper, but rather one in which you are being given a defined question/problem to address, written to a specific audience. In addition, rather than doing all your research independently, most of your sources will be pre-selected for you, giving you more time to read and think critically about how you want to use those materials. You will, however, have the opportunity to find one additional source based on your own interests and ideas and provide a complete annotation on that article.
Imagine that, in the wake of ongoing concerns about health inequities for Indigenous people and other communities of color in Minnesota, a task force consisting of researchers, disease advocacy groups, representatives from the eleven recognized Indian reservations and communities in Minnesota, and other stakeholders have asked you—an expert on doing genomic research that involves members of populations such as Am

erican Indian tribes—to write a ten-page report in which you explain what researchers and subjects ought to know about the ethical challenges of research that involves Native Americans, as well as what people—researchers, subjects, regulators, community organizations, and others—ought to do.
You realize that this is a complicated question, but please take a look at the scandal surrounding the Havasupai diabetes project and use that knowledge to explain the ethical challenges involved when doing research with Indigenous people, as well as ideas that others have proposed for how it can be done ethically.
Preselected Sources
Ross, Lainie Friedman et al. 2010. “Human Subjects Protections in Community-Engaged Research: A Research Ethics Framework.”
Garrison, Nanibaa’. 2012. “Genomic Justice for Native Americans: Impact of the Havasupai Case on Genetic Research.”
Pacheco, Christina M., et al. 2013. “Moving Forward: Breaking the Cycle of Mistrust Between American Indians and Researchers.”
Sanchini, Virginia, et al. 2016. “A Trust-Based Pact in Research Biobanks. From Theory to Practice.